Saturday, November 8, 2008

Little Man - Lewis


So this is my friend, Little Man. Actually his name is Japeth. Let me tell you a little about this little guy. He lives in his stroller a lot of the time. He can't walk on his own because he has cerebral palsy. Cerebral Palsy (CP) in its various forms is simply damage to the brain that affects motor skills. It is most commonly developed somewhere between pregnancy and three years of age. CP can have an affect on mental capabilities in children but for Japeth it is purely physical. His mind is sharp but his body is weak and he has to concentrate really hard just to move his arms and legs. So how does a guy like this at the young age of 4 communicate with the world (and with all of his sisters) when he can barely talk (or rather be understood) and can't even begin to sign with his hands? He uses his eyebrows of course (actually sometimes he would rather bite or try to throw a punch when his sisters are involved); and boy does he know how to use them. He expresses every emotion and can point at people or at something that he wants you to look at or notice. It's amazing that anyone could have so much muscle control in their face and yet lack that same control every where else in their body.

I met Japeth at the Feast in Sri Lanka. I was first intrigued by the opportunity to meet yet another small child. I love spending time with children and hearing what they have to say about things and just getting to know them, but with Japeth it wasn't so easy to do. His words were hard to understand, although his vocabulary was large. Luckily I speak many dialects of small child in various languages and in all kinds of conditions (this does not however include the crying baby dialect no matter how loud the cry). This God given talent enabled me to hear just what it was that this little man was trying to say. He appreciated that someone could speak his language for a change and we quickly became good friends. In fact at nearly every meal soon after our first dining experience together I was invited over by Japeth himself to help him stuff his face.


A favorite activity of mine has always been swimming. I have especially fond memories of swimming in outdoor pools at the Feast as a child as it was a treat not often enjoyed in western Washington. Japeth happens to enjoy a good swim as well. It gives him a chance to stretch out his arms and legs and exercise and develop the muscles that he does (or will someday) have. We had a good time in the pool as you can see. And when he is happy, Japeth has the biggest smile and the most delightful laugh. But don't get on his bad side. Those eyebrows work well for all kinds of things including the expression of anger. Sorry I didn't get a picture of the angry eyes.


Lena began calling Japeth "Little Man" at some point during the Feast and the name stuck. He no longer wanted to be called by his given name and insisted that he was Little Man. That's where we get the title to this blog entry. Meeting the little guy was one of the biggest delights of the Feast this year. There were others like finally being around a larger group of brethren for the first time in 2 months, hearing all the fascinating stories and adventures they had been on in their lives, oh and who could forget the amazing weather and the fantastic view of the sunsets over the Indian Ocean. But there is something special about seeing a child smile, knowing that they think the world of you because you gave them a little bit of needed attention or becuase you understood something about them that no one else could see or hear or feel. I can't wait for the next time that I meet Japeth again. Maybe he will have a few more successful surgeries to loosen those stiff muscles. Perhaps his legs will work properly and he'll be able to get up out of his chair and walk around. Maybe he will be able to speak with ease and swim like a fish. I look forward to that day, when the deaf shall hear and the lame shall leap. Japeth will be there on that day and he'll be right along with the rest of them leaping like a dear, but he'll also be growling like a tiger (one of his other favorite pasttimes).

6 comments:

Anonymous said...

I miss Little Man :(

Anonymous said...

What a wonderful story!! Lewie, I'm so glad you were able to bring joy to "Little Man's" heart and to his Feast, and I'm sure he brought a ton of joy to your heart and your Feast.

Unknown said...

Lewis I am so proud of you. You do have a gift with children especially being able to communicate with that little guy. Makes me want to go there an meet him too.

Corin said...

oh lewis, what a wonderful story.

ilene said...

Lewis, you will be such a wonderful father!

Anonymous said...

I would love to meet him some day. Thanks for the wonderful story Lew :)